In 2018, we partnered up with SCORR Marketing and conducted a study to gain knowledge about patient perceptions of clinical trial participation. Nearly 4,000 people responded to our survey about what is most important when deciding whether or not to participate in a clinical trial.
In 2023, we will create a second survey of patients with the same goal: to connect with patients via our advocacy partners, discover their motivations, and note any changes that may have occurred since 2018. We worked with the American Kidney Fund and Beyond Celiac to find participants who were eligible for the survey. JDRF also helped us identify those individuals.
This blog will focus on how patients want to be informed about clinical trials. We’ll also look at their preferred information sources and what information they value. We will continue to share data and analyze specific results from the survey throughout the rest of the year. If you’d like to see the complete report, including all our findings, then it is available right now.
What information do patients want about clinical trials from their doctors?
A significant majority (59%) of our respondents indicated that they preferred to learn about clinical trials through their doctor. The second and third most popular choices were websites that provide health and wellness information (42%) and advocacy groups or nonprofit organizations (40%).
It is possible to create more patient-centric digital marketing materials for corporations that focus on sharing information using formats that people are likely to find appealing and receptive.
Work with nonprofits and other sources of health information
The data shows that patients are more likely to get information on clinical trials from nonprofits and other sources of health information. It is possible to include these groups in recruitment pnonprofitsnical trials. Although those who are conducting the research may lack these relationships, working alongside recruitment agencies with a large partner network will help bridge the gap between the study sponsors and the advocacy groups that patients would like to hear from.
Creating patient-centric marketing materials for clinical trials
can be used to incorporate patient-centric marketing material in the outreach plan. Our survey respondents said that the easiest way to find out about clinical trials would be their biggest motivator to join a trial. This is something that can easily be done through digital outreach.
In addition, 48% of respondents said that they would like to know why it’s important to take part in a research trial and how that participation affects treatment options. Both of these are key points which can be used for recruitment. Sharing the information patients want to know will increase the likelihood that the patient population will receives outreach materials and that they will lead to a more successful study.
