Multiple sclerosis is a neurodegenerative disease that can cause many people to feel overwhelmed and isolated. MS is a neurodegenerative condition that can present with challenging symptoms. Knowing what to expect and what resources are out there, can be helpful.
We’ve listed some of the most important things to remember and resources that can help. Continue reading to find out more.
1. MS affects everyone differently.
It’s no coincidence that the symptoms of MS can differ from person to person and change over time. The symptoms are caused by damage to the brain. Damage can occur at different locations. The most common symptoms are dizziness and fatigue. However, the severity and duration of these symptoms can vary.
2. Finding the best treatment is a continuous process.
Recent medical breakthroughs have made several disease-modifying treatments available to those with MS. It’s great to have choices. Still, it can be hard to decide which is the best treatment since each one has its own advantages and disadvantages. It is often necessary to go through a number of tests and mistakes with your medical team to find the best treatment.
3. Clinical trials may provide additional treatment options.
Clinical trial volunteers are needed to continue MS studies. Research for MS is always underway. It is a common myth that only patients with MS can participate in clinical trials. However, many trials are available to all MS patients. Participating in a clinical study can provide many benefits. Not only can volunteers help advance medical science, but they can also access specialized care and the latest treatments.
4. The symptoms are likely to evolve over time.
MS symptoms vary from person to person. However, most people with MS have reported a gradual progression of their disease over the years. Most people diagnosed with MS initially have relapsing remitting MS, which is characterized by symptom flare ups and periods of no symptoms. Between five and 15 years after diagnosis, most RRMS patients progress to secondary-progressive MS. This stage is marked by more severe symptoms. Symptoms of progressive MS can still be partially recovered, but they tend to get worse over time. It is important to remember that treatment of MS can slow down the progression, and delay secondary progressive MS.
5. Patients and their healthcare teams can benefit from tracking symptoms.
A daily journal can be very helpful to all parties because MS symptoms can vary so widely. Doctors can identify patterns by tracking things such as the amount and quality sleep, exercise and diet, medications and weather.
6. Understanding complementary treatment options
Complementary treatment is a non-pharmaceutical approach to care that includes supplements, diets, and exercise routines in addition to medications. Exercise is one of the most effective complementary treatments for MS. However, more research is required to understand their potential effectiveness. A physical therapist will help patients find the exercises that are best suited to their symptoms and mobility. This can reduce fatigue, improve bladder and bowel functions, and improve mood.
7. Many MS communities are available to connect with.
Many support groups meet online or in-person to help patients connect with other MS sufferers. These groups can reduce feelings of loneliness and isolation that are often associated with MS, and also provide information about new treatment options and tips on how to live with MS. These organizations and websites offer resources and opportunities to get involved.
MSWorld: This patient-run, volunteer-based organization connects people with MS through chat rooms, message forums, and other patient resources.
Multiple Sclerosis Association of America: MSAA offers educational resources to patients as well as assistance programs that provide items for MS sufferers.
National MS Society This large non-profit organization funds an array of research and educational programs, including Walk MS and Bike MS.
MS Focus The Multiple Sclerosis foundation: MS Focus is dedicated to providing educational resources to help people with MS and their loved ones educate others about the condition.
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